Ehlers-Danlos Syndrome
What is Ehlers-Danlos Syndrome?
Ehlers-Danlos Syndrome (EDS) is a group of genetic connective tissue conditions that affect how the body’s collagen is formed.
Collagen is a key building block for joints, muscles, tendons, ligaments, skin, blood vessels, and internal organs.
When collagen doesn’t behave normally, the body may be more flexible, less stable, and more easily irritated or injured.
EDS exists on a spectrum — some people experience mild symptoms, while others may have more complex or widespread challenges.
Common Features of EDS
People with EDS may experience a combination of:
- Movement and physical function
- Joint hypermobility (excessive flexibility)
- Joint pain or frequent sprains
- Recurrent subluxations or dislocations
- Muscle fatigue and weakness
- Poor joint position sense (proprioception)
- Soft, stretchy, or fragile skin
- Delayed healing or easy bruising
- Autonomic symptoms (e.g. dizziness, rapid heart rate, temperature sensitivity)
- Chronic pain that fluctuates day to day
- Not everyone with EDS has all of these symptoms.
Physio may focus on
- Targeted strength training
Building muscle support around joints to improve stability and reduce strain. - Proprioception and balance
Improving joint awareness to reduce instability, injury risk, and improve confidence in movement. - Movement retraining
Teaching efficient, low-threat ways to move during daily activities, work, and exercise. - Autonomic nervous system regulation
Supporting regulation of the nervous system, which can influence pain, fatigue, dizziness, heart rate, and exercise tolerance. - Physiotherapy may help improve the body’s ability to adapt to physical and emotional stress, reduce flare-ups, and support conditions commonly associated with EDS such as POTS and orthostatic intolerance.
- Managing co-morbid conditions (e.g. POTS)
Exercise and activity are adapted to account for dizziness, fatigue, heart rate changes, and upright intolerance where present. - Load management and pacing
Matching activity levels to recovery capacity to avoid boom-and-bust cycles. - Reducing flare-ups and injury risk
Through smarter training, body awareness, and early recognition of overload. - Education around pain and fatigue
Understanding that symptoms often reflect nervous system sensitivity rather than tissue damage.
why choose PhysioPhil
Our Approach to Physiotherapy Care
People choose PhysioPhil because of the strong focus on individualised care and thoughtful, professional support. Every appointment begins with a thorough assessment and a clear discussion about your concerns, goals, and movement needs. This allows physiotherapy care to be planned in a way that is appropriate, practical, and relevant to your situation.
Clear, honest communication is central to the way we work. We take the time to explain assessment findings, outline management options, and answer any questions so you can feel informed and confident about your care. Our approach is goal-focused and delivered in a calm, respectful environment that supports comfort, understanding, and participation throughout your physiotherapy journey.
Physiotherapy services are tailored to individual needs. Outcomes may vary, and treatment plans are developed following a professional assessment.
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